Alliance4Rare gGmbH

Alliance4Rare gGmbH is a charitable, non-profit organization based in Germany, established in 2023. It functions as an alliance of patient organizations, medical and scientific experts, and research institutions. The company's mission is to act as a central coordinating body to improve the diagnostics, treatment options, and overall quality of life for individuals affected by rare diseases by fostering collaboration, engaging in political advocacy, and supporting research.